Flown in to UCSF for third time...

Saturday, October 1, 2011 8:42 PM, PDT

for those of you who don't know, abigail had a fever tuesday morning and was flown to UCSF because her white blood cells were low. she was put on two different antibiotics given blood and the next day was playing and acting her old self. she spent 3 days in the hospital with no fever. so they let her go to family house till her appointment on monday. so far she still has no fever and they don't know why she got one, nothing grew on the cultures, so maybe just a virus. she starts chemo again on monday, her 3rd cycle. we will go home on monday and finish chemo at home. she is doing very well, little side effects from the chemo. the hope is after her 3rd cycle her blood counts will start to come up, possibly 4th cycle. but soon we should see some positive numbers. i know we will. she is just full of energy, and feels a lot better. receiving the blood also helped a lot. her heart rate was very high while she was sleeping tuesday morning, a combination of her fever and low hemoglobin, which was 7.9 on monday dropped (with fever) to 6.9 so her heart has to work harder to pump oxygen to her blood cells. all of her numbers were up on monday and dropped with the fever. it is so crazy how things change from one minute to the next, literally. thanks to everyone who prayed. love you all

 

Abbi doesn't like the chemotherapy Olympics...

well abbi is on her last day of chemo for her 2nd cycle, we are sitting in hospital today cause clinic is not open, we are waiting for the chemo to get here. so i figured an update was overdue. anyway, things are good, since my last update abbi has become neutropenic, her wbc and anc has dropped, to be expected, but seems to be going up slowly again now. but her hemoglobin and platelets are dropping now. we have made it so far with no transfusions and we plan on getting through it with no transfusions. some good news is that she might be able to have this chemo in our hometown, so we are praying for that. would be such a nice break. my husband and son stayed home while abbi and i and a friend came down. and i have to say i am proud of dennis for holding down the fort while we were gone, bringing blake to school, going to work, cooking dinner, cleaning house. i have to admit i was nervous. but it all worked out. so after this chemo today we are headed home! excited and so ready to go home! so goodbye for today, Abbi's Mom

 

Abigail's Summer of outpatient Chemotherapy Treatments

just a quick update today, abbi is doing well. she has her next chemo sept 6th. if she does well and her blood counts don't drop too low, which they didn't this time, she may be able to go back to school. she is excited for this. she will be on meds to prevent sickness and infection. but this is promising news, and we are very happy. she is an amazing little girl. god is great! Mom

The hero is in you

Scorpions - Wind Of Change

day 3 of chemo and she did get sick this morning but that was it, so far so good. she will be able to go home sunday and when she comes back on sept 6th she will be outpatient for the 5 days. she will recieve the chemo in clinic every day for 5 days then home again till next time, schedule, every 28 days from first day of each cycle, so first day was on the 10th this time 28 days from now will be the 6th of sept, and so on. maybe some cycles could be at home, would be alot easier on us. there is also a child down the hall who needs prayer also, his transplant did not take and they are running out of options for treatment due to his previous treatment for leukemia that has damaged his liver. so goodnight everyone

Abigail starts chemo, Azacitidine, today.

Hi everyone, Abigail starts chemo, azacitidine, today. in just a few hours. she had to have her broviac line removed due to an infection 2 weeks ago, but that made her happy. so in between chemo the last week we went camping and swam, swam, swam! then she was readmitted to UCSF for the chemo that will be administered for 5 days every 28 days for at least 6 months. then they will check her bone marrow to see when she goes into remission again and then give her a large amount of donor cells to hopefully induce GVHD. so yesterday she did have to have a picc line inserted into her upper left arm, kind of like an IV, to give the chemo. she is down in the play room now and had spent most of the day in the school room learning about coral reefs and the continents. as long as she does not have bad side effects she will be able to go home next week after her bmt appointment with her transplant docs. only time will tell how this will effect her, one thing i know is it will work. it has to

Mom