Thursday, October 28, 2010

Abigail recovers in record time!

Here is the newest message from Abigail's Mom on progress:

yesterday was abigail's doctor appointment. post transplant day+56. she is doing great! her platelets are climbing. her wbc and anc (white blood cells and absolute neutrophil count) are up and down but that is to be expected. those don't usually completely recover till almost a year post transplant. her lymphosytes are climbing which suggests to them that she has some graft vs lukemia going on in her body. just means that her new marrow is killing whatever is left of her lukemia cells. and we are tapering her prograf. down .5 every week. till she is completely off by dec 8th. i guess that is very aggressive, by day 100. usually kids stay on it for 6 months. and this will be about 3 months. they do want her to have a little gvhd. just the skin and gut. she would get a rash and some stomache pains, diareah maybe nausia. 
so tuesday the 2nd she is having a bone marrow biopsy to make sure she is 100% donor there also. and on nov 3rd is her monthly ivig (immune booster) then we get to go home for at least 2 weeks. 

Friday, October 22, 2010

Abigail breaks out!

If all goes according to plan the UCSF Doctor team is letting Abigail return home with her family on November 3rd, 2010.  The family now has a new used vehicle for her monthly doctor visits to San Francisco Children's Hospital (Parnassus Street- Sunset District). I will post more news when they arrive as it comes.  Bless them all! 
    
Here is an excerpt from her Caringbridge page on her great progress:


Abbi's Mom says:
so things keep moving in the right direction. abbi is off hydration as of today. off of her blood pressure med. she is 100 percent donor. the docs are gonna talk about tapering her down from prograf in the next 2 weeks. and having her totally off in 6 weeks to waken up her new immune system. they have to be careful not to give her too bad gvhd. but they will hopefully taper her quicker than last time. she looks good and the doc said her stubborness is paying off. he couldnt believe she bounced back so quick from the peri engraftment syndrome that had her in icu and on oxegyn. but we all know abbi is very strong willed. i haven't been updating as much, probably now once every couple days or week depending on things. we just can't wait to go home. we are getting new carpet in our house. and we got our new car. so we are happy. ESPECIALLY HAPPY THAT ABBI IS DOING WELL! 



                  


Wednesday, October 6, 2010

The home stretch...

Abigail has been in hospital for about two months now and it's finally time for her to leave for the family house down the street and going home will be in a few more weeks possibly November 3rd. She has survived severe reactions to chemotherapy, radiation, and drugs pumped through the "chest port" which she endures everytime she has one of these frankenstein experiments done to her. Not to mention the torture her body gives her while the new white blood cells, red cells, and platelets are forming and the reactions every time new blood cell growth begins to occur. Now she has the chance to experience life on the outside of her small hospital room again.

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