Monday, October 31, 2011

today starts abbi's 4th cycle of azacitidine, we are in san francisco till friday. today is halloween and she was a little upset not to be at home with her friends, but we are gonna try and go trick or treating around here. and from 2 to 4 today is the halloween party at the family house, and it is pretty cool we were here last year. so she brought her costume, which is a devil, she chose to be about 5 different things before settling on the devil, one was being an angel which she has the costume for. but she looks very pretty in her devil costume. i kinda wished she would have chose the angel. well today is gonna be long, appointment at 10am she has her IVIG, dressing change, blood draw, doctor visit, chemo, oh and FLU SHOT! she hates shots so don't know how this one will go, been a while since she had one of those. but we don't want her getting that nasty flu, we will all be getting one, and no we are not requiring it this year for anyone else. she has been doing well since her last update, only 2 fevers, one of them sending her to mercy at home in redding for the night, yes we she got to be treated at home, her anc was good and the docs here felt as long as the blood cultures were negative as they were last time they would be comfortable treating her at her home hospital. she did have to have another blood transfusion though, which there has only been 2 since we started this chemo. so all in all mild side effects, but this chemo calls for at least 4 to 6 cycles to see an effect on her blood cells. it seems her asthma is acting up again, cough and wheezing. which has always been her only symptom. so chest xrays to rule out pnumonia, both negative. just asthma, she has not had a flare up in about 2 yrs. since right after her 2nd transplant. but i guess asthma symptoms can happen whenever they want. so i am gonna close for now and update when i can. Candi (Mom)

Thursday, October 13, 2011

Flown in to UCSF for third time...

Saturday, October 1, 2011 8:42 PM, PDT


for those of you who don't know, abigail had a fever tuesday morning and was flown to UCSF because her white blood cells were low. she was put on two different antibiotics given blood and the next day was playing and acting her old self. she spent 3 days in the hospital with no fever. so they let her go to family house till her appointment on monday. so far she still has no fever and they don't know why she got one, nothing grew on the cultures, so maybe just a virus. she starts chemo again on monday, her 3rd cycle. we will go home on monday and finish chemo at home. she is doing very well, little side effects from the chemo. the hope is after her 3rd cycle her blood counts will start to come up, possibly 4th cycle. but soon we should see some positive numbers. i know we will. she is just full of energy, and feels a lot better. receiving the blood also helped a lot. her heart rate was very high while she was sleeping tuesday morning, a combination of her fever and low hemoglobin, which was 7.9 on monday dropped (with fever) to 6.9 so her heart has to work harder to pump oxygen to her blood cells. all of her numbers were up on monday and dropped with the fever. it is so crazy how things change from one minute to the next, literally. thanks to everyone who prayed. love you all