day 3 of chemo and she did get sick this morning but that was it, so far so good. she will be able to go home sunday and when she comes back on sept 6th she will be outpatient for the 5 days. she will recieve the chemo in clinic every day for 5 days then home again till next time, schedule, every 28 days from first day of each cycle, so first day was on the 10th this time 28 days from now will be the 6th of sept, and so on. maybe some cycles could be at home, would be alot easier on us. there is also a child down the hall who needs prayer also, his transplant did not take and they are running out of options for treatment due to his previous treatment for leukemia that has damaged his liver. so goodnight everyone

Abigail starts chemo, Azacitidine, today.

Hi everyone, Abigail starts chemo, azacitidine, today. in just a few hours. she had to have her broviac line removed due to an infection 2 weeks ago, but that made her happy. so in between chemo the last week we went camping and swam, swam, swam! then she was readmitted to UCSF for the chemo that will be administered for 5 days every 28 days for at least 6 months. then they will check her bone marrow to see when she goes into remission again and then give her a large amount of donor cells to hopefully induce GVHD. so yesterday she did have to have a picc line inserted into her upper left arm, kind of like an IV, to give the chemo. she is down in the play room now and had spent most of the day in the school room learning about coral reefs and the continents. as long as she does not have bad side effects she will be able to go home next week after her bmt appointment with her transplant docs. only time will tell how this will effect her, one thing i know is it will work. it has to

Mom

Bad News in July 2011

we have some bad news about Abigail, she is relapsing. everything was great one month then we went to remove her line and her blood counts were low, so they did a biopsy and found abnormal cells. but the oncologists and her doctors have a plan they are discussing, so there is still hope. pray hard for her fast recovery, she is so strong and i will update as soon as they have a plan in place.

 

June 2011 Visit To UCSF TESTS

Abigail will have her central line removed sometime around july 14th. her blood engraftment came back at 100% donor. now they will check her bone marrow. she had a slight bloody nose this morning which worried me but i knew her blood counts were good so i had to say to myself she can get a bloody nose and still be healthy. i am going to worry about every cold and cough and bloody nose for a long time. we are going on 10 months and dr dvorak says it is a good sign she has made it this far. well goodnight all

written by Candice Courtemanche

June 2011 During the Full Moon Eclipse on 15th

Tuesday, June 14th, 2011 12:14 PM

sorry to everyone for the delay in updates. abigail is doing wonderful! june 2nd marked 9 months since her third transplant and she is still disease free. her blood work is awesome. we are in san francisco for her check up tomorrow, some IVIG. she is so close to being off isolation she can't wait! her 11th birthday is june 28th. so exciting, we can't believe how time flies. she has been going through all of this now for 3 years. strong girl, she has had to grow up the last 3 years in and out of hospitals. but we finally see a light at the end of a long tunnel. she is not completely out of the woods yet, but with every month that goes by i know for sure we will get there. thank you to everyone who prayed and supported us through it all. i will try not to make the updates so far apart, as i know everyone wants to know how she is doing.

Mariah Carey - Hero

In the midst of Earthquakes, Tsunamis, and Fallout... I am 100 % Donor